The Gluten Syndrome, Gluten Sensitivity, Gluten Intolerance, Gluten Connection, Celiac Disease, Gluten Challenge

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Disclaimers and Copyright Information

This website is noncommercial and not for profit. We have no financial interest in products or services mentioned on this site.

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The Gluten Grain Sensitivities Primer, The Gluten Grain Sensitivities Circle Diagram, the 7 Medical Viewpoints Chart and other pages exclusive to The GlutenSyndrome.net are free for distribution on the internet or in print. Permission must be obtained to change any content. Copyright information for research articles or otherwise that have been imported onto this site with permission will be clearly marked. This material may not be used for profit. It may be offered for free download on a commercial website if no purchase is required. If distributed in print form, inexpensive printing costs may be recovered. Check this website and others frequently for updated information.

Text Ó 2006 Olive Kaiser TheGlutenSyndrome.net

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I am a patient, not a medical expert, but share with others information that I have personally found helpful.

Always consult with well informed healthcare professionals for medical advice regarding your situation. Always verify the gluten free status of products you consume as ingredients change.

Be aware that knowledge in these areas is rapidly changing and some information contained on this website may become obsolete.

Please continue to stay in touch with well informed healthcare professionals and remain abreast of current research in order to make well informed decisions regarding your own health care.

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Welcome to The Gluten Syndrome.net

(The Gluten Syndrome defined on this site: "any adverse reaction to gluten grains")

An overview and comparison of current viewpoints.

This site examines more than one viewpoint of The Gluten Syndrome and related food reactivities, medical hypotheses and research. As you explore these increasingly publicized health conditions and their cheeringly positive solutions, we trust you or someone you know is encouraged to relieve or avoid the serious consequences of these conditions.

Most gluten syndrome resources are published by medical research programs, support organizations and food vendors. Only a few websites and online patient forums reflect perspectives from the largest laboratory of all, i.e. the gluten syndrome community at home, school, work, play or church. Each viewpoint provides balance in your search for information.

.4 crucial points top bookmark

This referenced website is patient owned, family supported, and reports the state of this growing community from a patient perspective. It is the aftermath of our 22 year old daughter’s serious reaction to a gluten challenge*in 2003. The information we found as we pieced together the “whys” of this avoidable incident is the information we share here. We hope these perspectives and stories help others wisely manage their diagnosis process, enjoy improved health, and avoid the pitfalls and misperceptions we encountered.

* A "gluten challenge" means that a person who has not eaten gluten grains for some time resumes eating them for several weeks or months in order to be tested for adverse reactions to gluten.

Four crucial points

we wish we'd understood

when we first learned about gluten and celiac disease.

1) There are several medical viewpoints of The Gluten Syndrome versus the commonly taught views of "celiac disease". The vital differences were not obvious to us as new inquirers.

2) Many researchers, professionals and patients believe there are many serious manifestations of the gluten syndrome other than "villi damage celiac disease" and IgE "wheat allergy".

3) Other food reactivities may produce symptoms similar to the gluten syndrome. Their relationships and serious cross reactions with each other are now recognized by researchers. Known cross reactive foods include wheat, barley, rye, corn, soy, milk, eggs, yeast, coffee sesame and chocolate, (also in many cases, oats.) Even some non gluten grain substitutes may trigger reactions in a few people. "Leaky gut" (see Medical Diagrams) is thought to play a role in multiple food sensitivities.

4) A "gluten challenge" often does not provide the "celiac disease subset" diagnosis that the patient confidently expects, even if he has experienced dramatic improvement on the gluten free diet. Such patients may have manifestations of the gluten syndrome that might show up if a more complete, detailed test panel is used, or they may have antibodies for which no tests have been developed at this time. Furthermore, a gluten challenge is reported by many patients to be a miserable, even "horrible" experience and in some cases has induced serious depression and other prolonged or permanent physical harm even when "celiac only" tests at the conclusion of the challenge were negative.

5) "Indiscriminate cheating" on the gluten free diet, i.e., occasional consumption of gluten, may trigger stronger physical and/or neurologic/depression/psychiatric reactions than were experienced before the patient began the gluten free diet. Severe silent reactions cannot be ruled out. Cheating is similar to a gluten challenge and is not OK.

More details and references here for "4 Crucial Points we wish we had understood".

New Gluten Syndrome Resources and Updates

These resources are particularly important for negative celiac testers and persons investigating gluten reactivity, now aptly named

"The Gluten Syndrome".

These resources present a wider perspective of the gluten syndrome than "only villi damage celiac" focused literature.

September, 2008 - Fall seminar schedule for healthcare practitioners,

Unlocking the Secrets of Gluten Sensitivity

by Dr. Thomas O'Bryan www.thedr.com

DON"T MISS THIS - IT WILL CHANGE YOUR PRACTICE FOREVER

Sponsored by Metagenics, this vital and popular day seminar for healthcare practitioners covers new and less understood research by Dr. Vojdani (see below) and Dr. O'Bryan It includes how to differentiate between types of the gluten syndrome, testing, and appropriate response to each situation. This information fits the patient community like a glove.

Details: http://www.metagenics.com/seminars/gluten_sensitivity.asp

JUNE, 2008 - New audio presentation and research articles by Dr. Aristo Vojdani,

Immunosciences Laboratories, Beverly Hills, CA

The Role of Mucosal Immunity in Complex Diseases

(also see Medical Diagrams page) Presentation slides

Presented at the Pan American Allergy Society,

Woodlands, Texas, March, 2008

Dr. Vojdani discusses the role of mucosal barriers in The Gluten Syndrome and related food reactivities. He also explains the consequences of cooking and processing on these foods and our reactions to them.

New Research Articles

The Immunology of Immediate and Delayed Hypersensitivity to Gluten - Aristo Vojdani, PH.D, M.T., Thomas O'Bryan, D.C., C.C.N., DACBN. European Journal of Inflammation, Full text here

The Immunology of Gluten Sensitivity Beyond the Intestinal Tract - Aristo Vojdani, PH.D, M.T., Thomas O'Bryan, D.C., C.C.N., DACBN Full text here

JANUARY, 2008 - DVD coming

Second Intestinal Health Institute Conference, Taos, New Mexico, April 3-6, 2008

Dr. Kenneth Fine, owner of Enterolab, Dallas, Texas, and other speakers including Dr. Ron Hoggan, Educator, and Dr. Rodney Ford, Australia, bring their collective wisdom and important, highly relevant research reports to this informative and entertaining event. Don't miss it!

A Health Conference to Educate, Entertain, and Enlighten You

http://www.intestinalhealth.org/Taosevent

NEW DVD! Relevant, highly worthwhile!

DVD - Smarten Up! by Ron Hoggan, ED D.

Book - Dangerous Grains by Dr. James Braly, MD

and Ron Hoggan, Ed D

This DVD is a compilation of 3 lectures

by Ron to teachers at educational conferences in Canada. He explains the neurology of gluten reactivity and it's impact on children and adults alike. The referenced information on this DVD is very helpful and in tune with research by Dr. Mario Hadjivassiliou and Dr. Aristo Vojdani PhD, MT.

Dr. James Braly,MD and Ron Hoggan also wrote Dangerous Grains, the book that pioneered the concept that gluten affects far more than the gut, most particularly the brain and nervous system. Ron Hoggan is an educator and is gluten reactive himself.

Both Dangerous Grains and Smarten Up are available from www.dangerousgrains.com, www.glutenfreemall.com, and www.amazon.com

Book - The Gluten Connection by Shari Lieberman, PhD., CNS, FACN

The Gluten Connection is a forward thinking treatment of gluten reactivity. It brings the reality and scope of "the gluten connection" into sharper focus. Shari meets the situatin head on of many patients undiagnosed or misled by incomplete negative tests than those who happen to fit the narrow "celiac with villi damage" subset. Her treatment of the issues fits the gluten reactive community. This referenced book lays out the basics of "the gluten connection", many related diseases including neurological disorders, pets and gluten, and the business of adjusting to a new lifestyle, going gluten free. A generous section of recipes are included to set the newbie on a delicious path to better health.

This perspective of gluten reactivity meshes well with information presented by Dr. Aristo Vojdani, Dr. Thomas O'Bryan, Dr. Ken Fine, and Ron Hoggan.

Available www.glutenconnection.com , www.glutenfreemall.com and amazon.com

June 2007

Animations of tight junctions and the role of zonulin in intestinal wall cells.

This process is sometimes referred to as "leaky gut" and is thought to be involved in a number of adverse health conditions including allergies and intolerances. These animations describe the process shown in the Medical Diagrams mentioned below. Special thanks to Alba Therapeutics www.albatherapeutics.com for these animations.

May, 2007

Medical Diagrams with audio presentation

"Dietary Proteins and Peptides from Gastrointestinal to Neuroautoimmune Disorders" Presented March , 2007, Pan American Allergy Society

Dr. Aristo Vojdani Ph.D., M.T.- Immunosciences Laboratories,

Beverly Hills, CA

Dr. Vojdani explains his diagrams of celiac disease, gluten intolerance and gluten sensitivity and compares them to the normal healthy gut. He also discusses his highly detailed Celiac Neuroautoimmune Test panel, (available Neuroimmunology Labs, WI), which includes the additional antibodies discussed below in the next link. This is the same panel mentioned in the DVD "Unlocking the Mystery of Wheat and Gluten Intolerance". These diagrams and audio presentation may be downloaded for use at Dr. visits and other educational purposes.

June, 2006

More antibody tests & tests beyond the villi biopsy. These include gluteomorphins, wheat (the whole kernel), and IgM tests for all gluten related antibodies, plus cross reactive food antibody tests, and target organ damage tests.

Stool antibody & general intestinal function research announcement

More gluten reactivity genes

Details and references? See "4 Crucial Points Explanation and References" and the "Testing" page, both also found on the next page.

New DVD's* - Crucial current gluten reactivity research overviews

DVD - Intestinal Health and Beyond Conference

Dr. Kenneth Fine, MD - March 2006 Enterolab stool testing research announcement with additional speakers and features. A long awaited perspective sought by the gluten sensitive community. Associated tests are available at www.enterolab.com without Dr. script. Available www.kennydavinfine.com